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#5638 - 12/29/10 08:55 AM
Confused and need some input
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Anonymous
Anonymous
Unregistered
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Hi, I am new to this site. The reason that brings me here is that I recently had blood work done to test for lupus and lyme. The western blot came back positive for lyme. 23KD(igm)reactive & 41KD(igm) reactive. All of the IGG came back non-reactive. I have had persistent mucle and joint pain along with memory loss, brain fog, words and sentences getting mixed up, along with other symptoms for about 2 years now. I do not recall getting bitten by a tick. Within the last month I was diagnosed with fibromyalgia. I was put on 21 days of doxycycline which I finished about 2 weeks ago for the lyme. I went to see an infectious disease doctor today, who said I do not have lyme. He said my symptoms are caused by the fibro. I am not sure that I should leave it at that. He said the doxycycline would have taken care of the lyme if I indeed was exposed to it. Shouldn't the doctor want to run more blood test's. That's it?? I should take his word for it that I do not have lyme. He said he will test again just to make me feel comfortable and will see me again in 2 weeks. Isn't there a better test to be used other than the wester blot. I really don't know in which direction I should go. Would I be better off seeking the help of another doctor?? Someone who specializes in Lyme?? Any info would be greatly appreciated. Thanks in advance
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#5947 - 06/06/11 08:32 AM
Re: Confused and need some input
[Re: Anonymous]
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jenm
New Researcher
Registered: 06/03/11
Posts: 2
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I'm new to this site also and just diagnosed with Lyme a week ago. I have been sick for 18 years before getting this diagnosis. I started researching the LD 3 weeks ago when I went for the test. Everything I'm reading and undertanding makes me think that fibro/cfs, lupus, etc. are actually LD. Drs are reluctant to diagnose and treat for Lyme. I am not a Dr. but there sure is a lot of evidence pointing to this. I would find a Lyme Literate MD (LLMD), and get proper treatment. I wouldn't waste any more time or $ in a Dr. that is obviously ignorant of Chronic LD. These Drs do more harm than good in my opinion. I would look for a LD support group in your area through FB and/or a google search. Everything I have read about LD says it takes 1-4 years to treat it. Also, most people use many different types of treatment to finally get rid of it. I am taking anti-biotics and will add other alternative therapies as needed. Good luck.
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#5948 - 06/06/11 08:40 AM
Re: Confused and need some input
[Re: jenm]
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BryanRosner
Forum Veteran
Registered: 11/08/06
Posts: 264
Loc: Mountains of Northern CA
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I agree with JenM - find an LLMD at http://www.ilads.org - infectious disease doctors are a waste of time when treating Lyme.
_________________________
Bryan Rosner
DISCLAIMER: Bryan Rosner is a journalist, not a healthcare provider or doctor.
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