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#5055 - 05/14/10 06:43 PM
Lyme antibody tests. The truth, once and for all... please!
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FondestBianca
New Researcher
Registered: 05/14/10
Posts: 1
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It's been a long road. I long, painful, scary, confusing road. 5 years trying to get a diagnosis to answer my numerous mild to serious symptoms. Experienceing symptoms for over a decade. I FINALLY landed upon lymes disease and every single symptom fell into place so perfectly. And wouldn't you know I have a history of multiple tick attachments from childhood. Specialist after specialist, runaround, secondary diagnosis with no explinations, ignored, given up on, SO MANY SYMPTOMS (ranging from mildly annoying to life threatening), you name it... I've probably been there. The only place I haven't been in this lyme disease adventure is to treatment.
The only tests I could get my primary to give me were basic lyme antibody tests. Not even a western blot. I've been told everything from, "your levels are elevated but not elevated enough.", "maybe you had it before but faught it off and thats why you have antibodies still in your system", "it's a false positive", & "Some people who have never even been exposed have lyme antibodies present".
I've never been treated for lyme in any manner as an adult or in childhood. When I reminded them of this they gave me the line about possibly having faught it off on my own. *rolls eyes*
So, from people who actually know a thing or two about lyme, what can you tell me about my test results. Can you explain any other reason I could have these results, having never been treated, and NOT have lyme?? Do my results at least prove exposure at some time in the past? Do they prove anything that can be useful to me as I move on to the next doctor?
Oct 6th 2009 - b. burgdorferi - my value= .93
Oct 15th 2009 - b. burgdorferi - my value= .81
Oct 22nd 2009 - b. burgdorferi - my value= .94
This lab lists .91-1.09 as equivocal and asks that retest be done in 2 weeks. If above 1.09 they ask that western blot be done. I was actually told I was given a western blot following the third test and that it was negative. Just last week, upon asking for all of my lab results to be printed for me they informed me one was never done and the nurse reading my results must have been mistaken. Wonderful....
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#5090 - 05/25/10 09:48 PM
Re: Lyme antibody tests. The truth, once and for all... please!
[Re: FondestBianca]
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Steph7
New Researcher
Registered: 05/25/10
Posts: 2
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I would find a different Dr that will do a western blot test. I would get all your records, even from when you were a kid and maybe you can put the peices of the puzzle together. You could always find a LLMD (lyme dr) and go see him/her and maybe they will run more tests. I'm curious what symptoms you have been having and what labs have they done? As far as your test result goes there can be false positives and false negatives as well. But if you have a pos test it should be followed by a western blot test, especially if you've had symptoms. I think it even says that on the CDC's website. I would go to there site, print that out and show your dr that and then you can ask them if they think they more then the CDC!
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#5427 - 09/28/10 09:51 PM
Re: Lyme antibody tests. The truth, once and for all... please!
[Re: FondestBianca]
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dafd
New Researcher
Registered: 09/28/10
Posts: 3
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Antibody testing a patient sample the presence or absence of a specific antibody or antibody to the amount that is present.We normally pathogens as viruses and bacteria in our blood antibodies that ward off invading our bodies is analyzed. An antibody test, or antibody titer, detects the presence and measure the amount of antibodies in the blood.
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#5458 - 11/04/10 02:26 AM
Re: Lyme antibody tests. The truth, once and for all... please!
[Re: dafd]
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RQUICK1
New Researcher
Registered: 11/02/10
Posts: 3
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If you want an accurate test for Lyme, find an Electro Dermal Screening Technition in you area. I have had Lyme for 35 years and went through 3 years of the antibiotic protocol with no improvement. My doctor finally told me he could not do anything more for me. I then discovered EDS and found that people were being cured of Lyme with this treatment without the dibilitating side effects of antibiotics. I've been in treatment for 2 months and I feel better than I have most of my life. With EDS you get tested on every office visit and you see the Lyme decreasing in your body.
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#5949 - 06/11/11 03:01 AM
Re: Lyme antibody tests. The truth, once and for all... please!
[Re: RQUICK1]
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jenm
New Researcher
Registered: 06/03/11
Posts: 2
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I'm new to this forum and just got my LD diagnosis 2 weeks ago after 18 years of suffering and going from Dr to Dr. I tried EDS about 3 years ago to try to diagnose what was wrong. She was able to show all the areas in my body that weren't functioning properly and sold me several homeopathic tinctures to heal me. Spent all kinds of $ and got nothing. No diagnosis and more $ out the window. Not even sure how this could help after my experience. Maybe it helps to know what you have before you go in. I don't know but just wanted to share my experience so thst others will thoroughly research EDS before spending any $.
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