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#4903 - 03/09/10 07:20 PM
12 year old son just started antibiotics
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PrincipleHound
New Researcher
Registered: 03/09/10
Posts: 4
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He has had symptoms for about 5 weeks and started Doxy for two and Amoxicilin for 2 more. What should we expect?
No one is absolutely sure he has it as there was no rash.
Thanks for your feedback.
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#4904 - 03/10/10 09:58 AM
Re: 12 year old son just started antibiotics
[Re: PrincipleHound]
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Rich_skiweasel7
Forum Veteran
Registered: 12/29/06
Posts: 178
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You may get a herx (increase in symptoms) on day 2-3 and again on day 28. I suggest reading Dr. Burrascano's Guidelines and taking the Western Blot through IgeneX. IgeneX should direct you to a lab that will draw the blood and mail it to them.
If any of these bands show up positive, expect lyme.
There are nine known [Lyme] Borrelia burgdorferi species specific Western Blot antibodies (bands): 18, 23, 31, 34, 37, 39, 83 and 93.
Take care,
Rich
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#4905 - 03/10/10 05:48 PM
Re: 12 year old son just started antibiotics
[Re: Rich_skiweasel7]
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PrincipleHound
New Researcher
Registered: 03/09/10
Posts: 4
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Thanks Rich,
He just finished day 9 with out any sudden changes. In some ways he seems worse and others he might be better. He seems weaker, but more positive and I think his headache is eased up. He has a very slow growing caugh that is becoming more dominate and ear aches that are new (he did have an ear ache on onset, but it went away after the first week or so I think this might be part of a new cold).
Dr Green, Lyme specialtist in Los Altos CA,sent blood samples to Igenex. We will talk with her on Monday (day 14 of doxey and start of amoxicilan)and expect she will have results then. The sample was taken in week 5 of symptoms so I guess a negative even from Igenex could still be false?
I have some random questions for you or anyone who wants to chime in:
So typicaly do people who start treatment this early beat it within a month or so?
Is ILAD a reputable org?
Is it hard to get a positive on the IFA without Lyme?
****What should I ask the Doc on Monday (starting Week 7 of symptoms and week 3 of antibiotics)?
Thanks again!
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#4906 - 03/11/10 06:44 AM
Re: 12 year old son just started antibiotics
[Re: PrincipleHound]
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Rich_skiweasel7
Forum Veteran
Registered: 12/29/06
Posts: 178
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He may still be herxing. It will probably ease up soon. It is good to chart his symptoms. It's hard to remember how bad things were and on what day. Look for the 28 day herx cycle. That will help conform if he still has lyme.
If done early (I would say week 5 is early), the better the chances for a positive test. Dr.G is a good one. She is listed as a LLMD in some literature I have from many years ago.
For early lyme, I would say it should take at least 6-8 weeks of treatment to be well. There is nothing wrong (except for yeast issues) if it needs to be longer. It is best to make sure you kill off the spirochetes early. If they set up shop in the body, then it will take years of treatment.
ILADS is reputable, IDSA is not (as far as lyme goes).
I don't understand why the ELISA or IFA tests are used. It must be a cost thing. It only increases a patient's chance on getting a false negative. I know false negative numbers are high. I don't know about false positives.
Questions I would ask are:
- Why only 2 weeks of Doxy? (She probably has a good answer)
- What supplements should or can he take to help?
- What should we be doing to prevent yeast from becoming an issue? (Amoxcilin will make yeast an issue if you let it)
(side note: Diet drinks with Aspartame and Sucralose are no good, and most diet or reduced sugar drinks (like G2) have it.)
- What else should we be doing? (healthy diet, exercise, detox, ect)
Take care,
Rich (skiweasel7)
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#4910 - 03/12/10 03:36 AM
Re: 12 year old son just started antibiotics
[Re: Rich_skiweasel7]
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PrincipleHound
New Researcher
Registered: 03/09/10
Posts: 4
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Thanks Rich,
I thought that yeast was only a problem for more long term treatments. He is not eating a lot of sugar, but I will step up that precaution and watch the excessive carbs, and add a mouth wash to brushing.
Regarding Doxey, She did mention that it is not to be used on children for long term treatment and then she added that he is not under 8 and 2 weeks is not long term. So Im guessing she is being precautios because he is growing a lot right now -- but thats mostly a guess. My other docs did not think it was Lyme, and with no rash and only a positive on the IFA I dont think she is absolutely certain he has it so she may be being cautios not to hurt someone with a treatment that has a chance of not being the right treatment.
He kept saying yesturday that this is his worse day. He did not seem to feel better in the evening like he often does. His caugh is definately excellerating.
He turns 13 tomorrow. What a way to enter manhood. Not to make light of the illness for I do have a great respect for its consiquences, but I can see God using even this to work good things into him. He is taking it like a man.
How long does a hexing flare up last?
Thanks again Rich. Anyone is welcome to chime in.
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#4911 - 03/12/10 11:41 AM
Re: 12 year old son just started antibiotics
[Re: PrincipleHound]
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Rich_skiweasel7
Forum Veteran
Registered: 12/29/06
Posts: 178
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With the Doxy, yeast is probably not too big of a problem. But I believe Amoxcilin will killing all the bacteria in the gut (good and bad). This makes room for the yeast to go nuts. Dr. G will probably suggest taking a pro-biotic (if she has not suggested it yet) 2 hours after the Amoxcilin.
Dr. G is right, that Doxy is not recommended for children. But it is good one for early lyme. It kills lyme and most of the co-infections too. I don't know what the reason is or how old is old enough for Doxy. I agree with you, I think she is playing it safe.
I would say typically herxes last a few days. But they can go on for weeks. It sometimes takes a while to rid the body of the toxins caused by the die off. A hot bath (hotter the better, but not burning) with Epson Salt may help detox. Fresh lemon water helps too. I'm not sure if the caugh is part of the herx. But it could be. With my son (8 year old), I usally see knee pain and behavior problems.
Sad to hear about his 13th birthday is spent being sick. I hope tomorrow is a better day.
This message board sees little action. I feel I have to post here because no one else usally replys. You may get more support here (I don't post there too often as there are many others who answer better than I):
http://health.groups.yahoo.com/group/BorreliaMultipleInfectionsAndAutism/
Don't worry about the autism part. Just say your son has early lyme (no autism) and were told about this site. You'll get replies.
Take care,
Rich
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#4928 - 03/15/10 08:23 AM
Re: 12 year old son just started antibiotics
[Re: Rich_skiweasel7]
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PrincipleHound
New Researcher
Registered: 03/09/10
Posts: 4
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Thanks Rich. We will be talking to Dr G. today over the phone to get lab results....
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#4930 - 03/18/10 07:00 AM
Re: 12 year old son just started antibiotics
[Re: PrincipleHound]
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Rich_skiweasel7
Forum Veteran
Registered: 12/29/06
Posts: 178
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Is your son doing okay today? I hope he is doing better by now.
Were you able to get the lab results? How were they?
Take care,
Rich
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