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#4695 - 11/21/09 04:06 PM
Not sure what I have
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Dianne
New Researcher
Registered: 11/21/09
Posts: 4
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Hi all,
I'm 53, and have pains in my muscles, joints and bones with swollen lymph nodes, fevers and stiff necks on and off for over a year.
Never noticed any bullseye rash.
was put on amoxicillin -no change
then cephalexin - no change (I read about the effects of cellwallinhibitors after trying these)
-been tested twice over the last year for lyme, both negative.
Also tested negative for everything else on the planet...
Bartonella, Lupus, AIDS, rheumatoid arthritis, hep a,b,c, syphilis, toxoplasmosis, histoplasmosis and lymphoma. No medical coverage, so I'm up at the WestHaven, Ct VA. Recently did 28 days of 100m 2x/day doxy and felt a little sick after a week, then back to same old, same old.(Later found out this dose is too small)
Spent $450 to see an Infectious Disease doc at Greenwich Hospital who goes by the IDSA standard and doesn't think I have lyme. Can't afford any more outside doctors, so I don't know about getting to see an LLMD.
So I'm in a limbo that I've found a lot of others are also in. I have friends with long term lyme, who seem positive that I have it. Been reading Bryan's book and without further uselessness from my doctors, will be trying out some lyme treatments. If I ever get a "herx" then I'll say I have lyme, but for now I'm
-building a doug coil(I figure its good for lots of bugs, so why not)
-gonna try some of the other methods in Bryan's book minus the antibiotics for now.
Otherwise I'm scouring the net for info and getting more frustrated by the minute. LOL
Take care all,
Dianne
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#5407 - 09/27/10 10:59 AM
Re: Not sure what I have
[Re: Dianne]
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Elle
New Researcher
Registered: 09/27/10
Posts: 2
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Dianne,
I am so sorry for your saga. It can be really discouraging, especially when most of this Lyme treatment is out of pocket.
I was impressed that you are building a Doug Coil. How are you doing that? I would love to build one because I cannot afford to buy a Rife machine.
Thanks,
Elle
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