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#3327 - 04/15/08 03:02 PM
Southern California? Who knew?
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ERRN
New Researcher
Registered: 04/10/08
Posts: 2
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Hi,
I am Susan, and am new to Lyme and forums. I was diagnosed Jan 08, but probably
contracted the disease Jan 07. I was living in Santa Barbara at the time. Never felt a bite, or had a bulls eye rash. My symptoms were back and neck soreness/pain, and extreme fatigue. Those symptoms I explained away due to a recent muscularskeletal
injury, and all night study groups. Things gradually got worse. Night sweats, headaches, burning back muscles, etc. Aprox. Sept.,07 I had unexplained knee pain and swelling. One knee, then both knees, inability to open my mouth( jaw ), tibial pain, hip pain. In a month, I awoke with what looked like bells palsy, and I could hardly walk. The pain was the worst I had ever felt. That was when my life ended. I lost my job, my place I was living, and had to move into my parents house to be taken care of....mind you I am 46. I was not able to even turn myself in bed. I moved in Dec..07 and still spend most of my time in bed and in pain. If it wasn't for a show on T.V. I would still have a R.A. and Fibromyalgia diagnosis. A friend e-mailed a cdc site to find a literate lyme Doctor. He started Amoxicillin the day he saw me clinically, but also ordered labs. I was positive. I went from being an active E.R. nurse and chinese medical student, straight into a wheelchair. I feel I have been raped. I did not know this thing can eat your muscles like a pac-man. I have lost my left quad muscle, and developed a contracture in that leg. I am having physical therapy, but It kills me. Sometimes I go from a walker to a week in bed afterwards. No one seems to know what to do with me. They think lyme disease is only on the east coast, or up north. Never been there! I now have palpitations and a list of symptoms too long to list. Honestly, reading all this is very depressing, although I have learned much from this site. I feel like I'm disappearing piece by piece. I try to think positive and live day to day. Thought I would share my story outloud. Thanks for listening.
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#3426 - 05/02/08 01:04 PM
Re: Southern California? Who knew?
[Re: ERRN]
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BryanRosner
Forum Veteran
Registered: 11/08/06
Posts: 263
Loc: Mountains of Northern CA
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You might find this interesting:
http://lymebook.com/blog/geographic-inci...an-luis-obispo/
_________________________
Bryan Rosner
DISCLAIMER: Bryan Rosner is a journalist, not a healthcare provider or doctor.
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#3842 - 08/02/08 11:18 AM
Re: Southern California? Who knew?
[Re: ERRN]
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KLC
New Researcher
Registered: 08/02/08
Posts: 3
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Hi Susan,
I am sorry to read how sick you have been. I have been close to that sick, but in different ways. Are you in California? Have you heard of the Morgellon's Research Foundation (MRF) in San Fransico? Morgellon's is what I really think I have but test results say it is Lymes with Babesia, Rocky Mountain Spotted Fever, and West Nile Virus as co-infections. I live in central Texas-where almost all the doctors think that there is no such thing as Lymes Disease yet I have all of this. Anyway, Morgellons is a new disease, thought to be a Lymes associated disease since 99% of people with Morgellons symptoms test positive for Lymes. That might be an avenue to research or get second opinions. Ginger Savely is a nurse practioner who was kicked out of Texas by the Texas Medical Board for treating people for Lymes (since they think its not a real disease). She is at the MRF now and has a ton of experience in Lymes. I hope this helps. Good luck and good health to you!
Karen
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