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#1936 - 07/16/07 08:59 AM
Thank you for this web site. please help me!!!!!!!!!!
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pebles
New Researcher
Registered: 07/15/07
Posts: 5
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Ok I'm finally getting this to work. I'm a 36 female with 3 young children (10-7-6). with a husband that thinks that I am a hyprocan....this past weekend I was at a local county fair and met several ladies, who are RN's, that where working a booth and doing scan--Similar to the Rike machine. After the start of the scan she started to ask about LYMES Diesase. And it came up on every report that she ran. She looked at my eyes my pupils are different in size, my chest hurts, and I'm always fatigue and I can keep going. After going home and talking with my husband we started thing back 2 summers ago when we spent the summer in northren MN camping the month of June. I was biten and swelled up and thought that maybe a spider or something and my husband talked me out of going in to have it checked. After seeing pictures I realized that it must have been a tick. That summer I was very ill. I thought that I had the flu-recieved the shot. I could no longer sleep and still don't. I became very depressed and had to go on medicine. I have headackes 2-3 times a week, my joints and muscles are ache. I feel better when I exercise. But not always able to get there with our family life style. Sore throats and swellen glands but docters seem to think that I can fight the virus on my own. My big thing as of the last coulpe month is that I can't remember what I was about to say or do. I find myself driving and can't remember where I am going and why. I've been having to write detailed instructions to myself. Anyways After reasearching last night I've started writing everything everything thats been going on the last 2 years. I called my doctor who would not give me the time of day. So I called back to the help desk and a very nice lady at the hospital. Believed what I was telling her and hooked me up with a doctor from internal diesease control specialist. She said that this doctor will take me seriouse. I will see her on July 23, 2007 am. But what I need help with is what questions should I ask? I've been reading on different treatment. If she wants to do all the antibodics-should I because I think i"m past that stage. Any info, Any advise, Things that will help me to get this doctor to do the correct tests. Help?!?!?!?!?!?!
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#1937 - 07/16/07 12:02 PM
Re: Thank you for this web site. please help me!!!!!!!!!!
[Re: pebles]
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Rich_skiweasel7
Forum Veteran
Registered: 12/29/06
Posts: 178
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Sorry, I don't have enough time to go into details. But here is some good sites to start with (it is overwhelming, but you might get something out of it). Have your husband read up on it too. He should go with you to the appointment.
http://www.ilads.org/burrascano_1102.html
Here are some bad signs when interviewing a doctor (I think part of the first appointments should be somewhat of an interview):
-The doctor never heard of Dr. Burrascano.
-They think they can cure you in a few weeks.
-They depend solely on blood test results for a diagnosis.
-They may want to do an Elisa test, then if positive, do a Western Blot.
-They want to do a lumbar puncture to test for lyme.
-They slap a quick diagnosis (like fibromyalgia) on you and prescribe you pain meds for your lifetime treatment plan.
-After 15 minutes, the doctor trys to get one foot out the door before you are done with you list of questions. She may even walk out the door while answering one of your questions.
-Tells you lyme is rare in MN (look at the lyme map)
http://www.health.state.mn.us/divs/idepc/diseases/lyme/usmap.html
I'll write more hopefully next week.
Got to go.
Take care,
Rich (skiweasel7)
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#1941 - 07/17/07 11:33 AM
Re: Thank you for this web site. please help me!!!!!!!!!!
[Re: Rich_skiweasel7]
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pebles
New Researcher
Registered: 07/15/07
Posts: 5
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Thamks so much for the reading and the good web links to get myself and husband started in the correct area. DeAnn
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#1943 - 07/17/07 06:42 PM
Re: Thank you for this web site. please help me!!!!!!!!!!
[Re: pebles]
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BryanRosner
Forum Veteran
Registered: 11/08/06
Posts: 263
Loc: Mountains of Northern CA
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Check out this site:
http://www.chroniclymedisease.com
_________________________
Bryan Rosner
DISCLAIMER: Bryan Rosner is a journalist, not a healthcare provider or doctor.
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#1946 - 07/18/07 12:30 PM
Re: Thank you for this web site. please help me!!!!!!!!!!
[Re: BryanRosner]
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pebles
New Researcher
Registered: 07/15/07
Posts: 5
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A question that I have????? Even though I have over 20 of the top symptoms does everyone become disabilitated? Because as of now I do feel like something is wrong but I have watched videos and see people not moving very well. I just don't feel good and have to sleep more but I am active. And it sounds like you really don't ever get better. Can a person live with this and still lead a normal life. Pebles.
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#1949 - 07/19/07 08:21 AM
Re: Thank you for this web site. please help me!!!!!!!!!!
[Re: pebles]
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viviamo
New Researcher
Registered: 07/15/07
Posts: 6
Loc: Washington State
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Yes, I have read of many people finding their way to better health, I met someone yesterday that has recovered from confirmed Lymes. The question is if you recover 100%. I personally feel like I am recovering, I feel about 70% and have a ways to go - concidering I would rate my condition below 40% last Summer and Fall of 2006. 100% maybe, but i will be happy if I can hit the high 90 percentile that others have reported.
The biggest challenge for me, and what I read from others is finding a doctor that is Lyme literate that know how to identify and properly treat this disease. I think I finally found one yesterday for myself.
I located a local Doctor that speciales in Lyme and has the knowledge I need, and asked the right questions. I went for my first visit yesterday. After spending 1 1/2 hours with me it was concluded that I have a high probability of Lymes and co-infections, specifally Babesia - They did not have to tell me because I already know that I have Lymes, it is just good to hear doctor start to work with me and believes it themselfs.
They took between 8 to 10 blood samples to send off to various labs. They are overnighting a sample for a Western Blot test to Igentics in California to test for Lymes, and other tests are being sent for testing for Babesia and other potential co-infections.
What I am being told is that even though I have had success in a partial recovery on my own with Colloidal Silver, TOS free Catsclaw, and the Vitimin C & Salt protocol, that there are some co-infections that simply will not get resolved with out a precribed antibiotic - or at least that what I heard from the conversation.
I already know from my personal experience that recovery is a matter of time & persistance. The doctor is also saying that don't look at it as a 30 day recovery, it needs to be looked at in a 6 month or longer recovery, but you can recover.
Viviamo
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#1959 - 07/19/07 04:35 PM
Re: Thank you for this web site. please help me!!!!!!!!!!
[Re: viviamo]
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Willo
Spirochete Hunter
Registered: 11/10/06
Posts: 81
Loc: South Puget Sound, WA State
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Pebles, I just answered you under Viviamo's thread.. *points that way*
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#1963 - 07/20/07 02:47 PM
Re: Thank you for this web site. please help me!!!!!!!!!!
[Re: Willo]
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hilltophomestead
New Researcher
Registered: 05/09/07
Posts: 10
Loc: in the boonies of WA
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I don't think everyone becomes debilitated, in answer to your question. My 17 year old daughter was becoming debilitated, with many odd stomach/internal complaints to the point of spending 85% of her time curled up on her bed in misery when we finally figured out to test her for Lyme. Found out we ALL have it, tho only 2 of the 5 of us have the worst symptoms. We all live on an 80 acre farm and build fences, weed, sweat, in other words we work hard. We do have lots of symptoms but are usually able to carry on. Do have times of 'illness'. My son (age 22) suffers much more of the neurological symptoms. Sometimes he functions quite well, then has (herxheimers?) times of extreme vertigo, nausea, feelings of confusion etc. etc. and can't work. My husband is a general contractor and works hard all the time. He does have back and joint pain but functions very well. Everyone seems to react differently. We only tested positive for Borrelia Burgdorferi and no co-infections. I'd be glad to answer ANY questions about our experience that I can!
_________________________
Hilltophomesteader
"As for me and my house, we shall serve the Lord!"
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#1995 - 07/22/07 12:56 PM
Re: Thank you for this web site. please help me!!!!!!!!!!
[Re: hilltophomestead]
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pebles
New Researcher
Registered: 07/15/07
Posts: 5
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I'm not sure what direction to go to but I want to thank everyone for helping feel that I am not in this alone. Today I spoke to a woman who runs The quantum biofeed back machine. She's been telling me of her sister who's had lymes for 5 years and have been having some very confusing symptons and has been very sick in and out of the hospital. Anyways this lady is desencitizing her symptons with electronic shook waves and has taken her from a stage 4 to a 3. They have along ways to go. I registered at a 2 and one area at a 3 (my lungs)..... I did a session and I can't find out until after the 30th if its done any good.---It can't hurt.
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