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#1551 - 05/06/07 04:33 PM
Member Profile
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SaltySue
Health Activist
Registered: 11/11/06
Posts: 29
Loc: BC Canada
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Hi,
I have been going by the name Salty Sue for past year or so as I have been doing the salt/c protocol for so long now I am most salty. I have had lyme for at least 10 years but as I look back on my life I realize that I was a teen when I first started showing symptoms so that makes it almost 40 years which is a bit too hard to contemplate.
I was diagnosed late 2004 after having been disabled and pensioned off for about a decade. During the past year I have worked with a group of lymies to help create lyme awareness in British Columbia and in particular the south coast where I live.
I have regularly posted on another forum that is Canadian based but have run into quite a bit of censorship and feel the need to go somewhere else online that I can discuss what works and what doesn't without repercussions. Unfortunately the other forum is antibiotic based and you are not allowed to discuss anything that is not "Evidence Based". Well I think that evidence shows that antibiotics are not the whole answer!
A couple of months ago I finally convinced my daughter to be tested for lyme. Sure enough she is now undergoing treatment and I now know it is harder to watch a loved one go through a herx than to go through one yourself!
To tell the truth I see lyme everywhere! I think many of the people I know have lyme but they don't know it or refuse to consider it. I find this so frustrating and that is why lyme awareness is so important to me.
Have you ever gone to the park and watched people practicing risky behavior? I want to scream at them "GET OFF THE GRASS"! Of course if don't do this, I just shudder inwardly and call them tick bait.
Too many people are tick bait and they don't know it! I know I am preaching to the choir here but sometimes you just have to say it even if it is only to fellow lymies.
Well that is enough rambling for one night, thanks for reading this.
Sue
_________________________
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#1585 - 05/09/07 04:39 PM
Re: Member Profile
[Re: SaltySue]
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SaltySue
Health Activist
Registered: 11/11/06
Posts: 29
Loc: BC Canada
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Thought I would write a bit more about how I came to have lyme and all the other critters that live in me.
When I was growing up we used to spend the summer living in at tent at the lake and as the years went on my parents started renting cabins. One year we arrived at a place that was surrounded by high grass and we had to walk over a long path to get the beach. I think that was when it all began. Within a year I had been hospitalized in quarantine for an unknown infection that remarkably fixed itself. A year later my appendix burst and I suddenly developed an allergy to metals. I recently read that this allergy can be caused by a reaction to nickel when one has an infection.
Within the next year I developed shakes and spent about a year freezing cold, I was wearing a turtle neck and jacket when others were in shorts. Over the next 3 years I was to have many bad boughts of bronchitis, depression and insomnia.
By the time I was 20 I could not keep up with others my age, I took long to heal and had trouble learning new things. When I reached my mid 20's I fell in love with gardening and would spend my every available minute playing outside.
By my mid 30's I had experienced several soft tissue injuries that never healed and I found that gardening while still a joy was difficult. One day I noticed a bug that I did not recognize, I caught it and searched through all my garden books plus some at the library. Never knew if it was a beneficial or a pest, so I killed it and ignored the rest of them. Many years later I was to see a close up of a black legged tick, at last I had found my bug, definitely not beneficial!
I suspect that I have been preyed upon several times by these nasty bugs! I wonder too about all the mosquitoes that dined on me nightly as a child, what sort of presents did they bring?
_________________________
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#3263 - 03/31/08 06:41 AM
Re: Member Profile
[Re: SaltySue]
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SaltySue
Health Activist
Registered: 11/11/06
Posts: 29
Loc: BC Canada
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Figured it is time for an update. I have not been fighting the lyme for 3 1/2 years and have made huge progress but still have a ways to go.
So far I have done 11 months abx, 18 months salt/c, 5 months abx, then small amounts of the salt/c. Did MMS for about a month, man that was hard on the body, when I look back at my lyme log I see I was herxing every 2 - 3 days.
Currently I am taking 2 doses of salt/c per day and started teasel root last Wednesday. A friend of mine started it 5 weeks ago and she wrote to tell me she woke pain free yesterday. I think that is huge!
According to Lady Barbara it takes 6 - 12 weeks of teasel to recover from lyme. This sounds so much better than all the other answers I have heard. Keep your fingers crossed for me!
Thanks,
Sue
_________________________
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